Upcoming Events
completed Events
Christmas Coffee Morning December 2023
A lovely morning of cake, games and great company. We raised a lovely £382.85 to finish our year of fundraising off nicely!
Half Parks For The BDFA - October 2023
Our lovely friends Leah and Sean Banks and Jack and Paul Griffin completed the London Half Parks to raise funds for The BDFA
McKay`s BBQ - August 2023
The lovely, generous and fun John and Diane organised and hosted a fabulous day of live music, drinks, hog roast and auction and raised a whopping £3130 and the boys had a great time too!
Pedal4Memories Race Night - August 2023
All races, horse and jockeys were sponsored by you, our lovely community and local businesses and we had a great night of betting, drinking and laughs!
We raised an amazing £2154.35 - thank you!
Awareness Week Peckover Primary 2023
As part of Batten Disease awareness week, the boys school held a wear orange day and raised £75 in donations!
They all looked amazing and had a day full of orange themed activities too!
Shyla`s Marathon Walk - Awareness Week 2023
Shyla is the most determined, loving and incredibly motivated little girl and a special friend to Harrison.
Shyla walked a whole marathon in 1 day and showed us all how its done!
She raised a huge £1566 and we couldn't be prouder of her!
March 2020
Anne Hancock
Charity Fishing Match
February 2020
Fenland Running Club
Race Night
February 2020
Beth Hodgson
Disney Quiz Night
January 2020
Stacy Kowbas
Clairvoyant Evening
December 2019
We were so lucky that lots of companies, workplaces and communities held Christmas Raffles, Jumper days and collections all in aid of our fundraising project xx
December 2019
Barhale
Christmas Event
Awareness day Videos
Awareness Day 2023
We held a fun orange themed bike ride for all the family to join in this year.
Everyone came out in force and spread awareness and orange all around our hometown of Wisbech, we couldn't be prouder xx
Awareness Day 2022
We held a fantastic Orange themed disco to celebrate Awareness Day!
The children all had lots of, spread lots of awareness and raised a lovely £147.30 xx
Awareness Day 2021
Batten Disease Awareness Day 2021
LJ Dance Academy created this incredible video to have fun with Finley's dance school and raise awareness, just beautiful xx
Awareness Day 2020
Our first public awareness day and even though we were all in lockdown, our town turned orange!
Our amazing community shared photos of them wearing orange, decorated their windows, streets and had lots of orange themed fun at home!